Thursday, July 19, 2007
Wednesday, July 18, 2007
BACK from the Neurosurgeon and MISERABLE...
Then he discussed what we can do. He believes that surgery is not in the picture because he does not believe there is a high enough percentage it would work and does not want to take the chance. He believes it will take 6 months to a year to go away. I just about broke out in tears. My friend and the doc said look it has been almost 6 months already.
Some things I can do is swim since it takes all the weight off my back and lose weight which we are doing now. But does not guarantee the pain will go away.
I am so sad right now because it is so hard to function. I feel bad for Aviva because I cannot do much. I am trying to stay positive and deal with it but let me tell you it is not easy.
Tuesday, July 17, 2007
Just a LITTLE update on the past 2 days......
So when it was over they tilt the table up to a standing position and boy I felt miserable. They helped me out and gave me some water, took a bit to feel better. Just glad it is over. Now praying it is fine!
Today was the eye doctor who is really nice. It is a follow-up from 3 weeks ago. Well, she took the pressure in my eyes...which is fine, then dilated them. Then saw Dr. Katz, and she was happy they had the mri report to be faxed to her too. She looked at my eyes said you have us a bit worried about you (oh great, just what I needed to hear), but we will take care of you. So more drops then off to get photos of my eyes to see if any changes from 3 weeks ago. She will call after Friday's appointment for a follow-up with her.
Tomorrow is the neurosurgeon, hoping to get some ideas what they can do next for the pain!
Sunday, July 15, 2007
I am a bit NERVOUS.......
Then going to the neurosurgeon Wednesday....just want to be out of pain already. Yesterday went shopping with Aviva and got back to the car in tears and so much pain. She asks me to open her soda I got her and I did and exploded all over me and the steering wheel and I just lost it. With her and myself...I yelled at her and was crying. Most of it due to the pain I just cannot take it anymore...feel like my life is on hold and cannot do anything with her anymore.
GRAINS of GRATITUDE......
Another week of summer has gone by and boy it has been very hot this week. I stayed inside enjoying the A/C.*I am thankful to have had 2 good doc appointments this week. Both doctors were happy with my health and progress I have made. Blood pressure is normal with the help of Micardis and my Blood Sugars are doing much better.
*Aviva had a great week in camp and she is having a terrific summer...swimming twice a day and being with her friends makes her happy.
*Aviva is so excited because we leave in 2 weeks for Disney with Auntie Marie. I am just a bit worried due to my back and renting a scooter. We are going to meet up with friends who live in the area and who will be at Disney the same time as us!!! So should be fun.
*I am enjoying my class I am taking this term and have a great professor. I also registered for the fall. Taking another class on autism-Intervention for Students iwth Autism Spectrum Disorders, I am almost done with the classes for the endorsement and taking the Characteristice and Needs of Students with Developmental Disabilites. I think will really like them both.
*I am grateful to my friend Audree who will be coming with me on Wednesday to my appointment with the neurosurgeon. She is a nurse and I can use the help.
Friday, July 13, 2007
I have been tagged.......
1. I am a Diet Coke Addict.
2. I spent 3 years living in Mexico...in the cities of Mexico City and Cancun.
3. I love to read...and if I have the time would read a book a day.
4. I plan our Disney trips and after paid for I let Spider know when he needs to take off from work. He just says OK...which is good.
5. I want to open my own school that will be based on inclusion for children with and without disabilities.....for pre-k to 5th grade.
6. I am a really good listener....and pretty good at giving advice. Some of my friends think I should get another master's (when I finish this one first). I love to help people.
7. I cannot sleep without the TV. Spider is gone 5 nights a week doing overnights and one night he has a gig...so the TV keeps me company.
8. I do NOT like living in Florida!
Thursday, July 12, 2007
Finally some GOOD doctor news....
Tuesday was the endo. I must say it is nice to hear you are doing well. He liked how much better my blood sugars were and we talked about my back pain and therefore cannot exercise yet (helps the blood sugars). But he was happy and do not have to go back for 6 weeks.
Then yesterday my eye doctor called in the evening...a surprise. She wanted to see how my visit to the retina specialist went Friday. Told her I had an eye scan and then an angiogram type test for the eyes. And explained he saw that the optic nerve was enlarged and there was a problem with the blood vessels and blood in the eye. And he is sending me for an MRI for the brain and orbits with and without contrast. So she was happy to hear that and will see her Tuesday. What a nice surprise that she called.
Then today off to the cardiologist....He is really nice and funny too. My blood pressure was good 120/78...normally a little lower but I have been in a lot more pain this week with my back so that can be it. He was happy with everything so we chatted a bit and then said see you in 6 months.
Always nice to hear the good news after the past few weeks. Done with doctors till next week.
July 16-MRI
July 17-Eye Doctor
July 18 Neurosurgeon
July 20-Retina Specialist.
Have to reschedule neurologist same time as eye doctor.
Sunday, July 08, 2007
GRAINS of GRATITUDE...

Friday, July 06, 2007
TODAY is Friday.......
I was there for almost 4 hours. The first hour or so they working on insurance, have no clue why when they had all my info ahead of time.
Then the nurse/tech finally called me in and asks lots of questions, takes the pressure in my eyes, tests them and then dilates them.
OK now off to another waiting room to wait till eyes are dilated and then some.
Finally called into see the doctor. He checks the eyes and looks some more. Then says my optic nerve is inflamed and there is blood in my eyes and he needs to find out why.
OK back to the waiting room and have to give permission for this test where they inject dye into my arm to get to my eyes, so I do...wait some more.
Called back by the eye tech who first takes some more info and then does an eye scan. Then off to do the other test like an angiogram to see where the dye goes. She started to inject the dye in my right arm but blood vessel would not cooperate and it hurt so over to the left arm and it worked. She got some good pictures and then we were finished.
Back to the room so the doctor can view the pictures. So finally we are getting some where.
The doc comes in and says it seems there is something going on and the blood is not going where it is suppose to and there is blood in all 4 quadrants of my eye. So now he wants to send me for blood work...a few different tests. And then, an MRI of my brain and orbits with and without contrast.
So will call Monday to schedule the MRI and go to the primary to give blood---oy vey will it ever end.
Thursday, July 05, 2007
What an amazing group of YOUNG MEN....
See he was born with Muscular Dystrophy and went to a Special Needs camp for many years and ran into this boy at the camp. This young man and a group of other young men took Darius on a cross country journey. They made the trip into a documentry called Darius Goes West. It has been in many film festivels and won many awards.
I had tears in my eyes through out this piece. It is a must read and see.
Monday, July 02, 2007
Check out how one company benefits by hiring individuals with disablities.....
What a great thing they are doing!!!!!!! Makes me very happy to see stories like this.
Sunday, July 01, 2007
GRAINS of GRATITUDE

I am still in a lot of pain with my back but let me tell you what a help Aviva was yesterday. We had to go to the grocery store so we came home and I was really hurting. One bags handle broke and then climbing the stairs another one broke and I started to cry. She came and got it from and put it by the front door. I put my bags by the door too and went back down for more. While I was getting the bags Aviva carried them all inside and put them on the counter and got the rest I carried up on the second trip and then got me my ice pack. She truly is a very sensitive and loving child.
I am just thankful for my husband and daughter they keep me going...I have been in pain since February and it has not been easy. But they are there to take care and love me. And I can not ask for anything more.
Friday, June 29, 2007
It has been a while an UPDATE is in order...
She came to 3 doctor appointments with me this week.
First the eye doctor...needed to go being diabetic. What a nice doc she was..took her time and explained everything to Dawn and I. She said my eyesight is good. But being diabetic you have to worry about retinapothy. I do not have that but the blood vessels around the retina were inflamed and that was because my sugars were fluctuated. There is a name for it but can not remember. So going to a retina specialist July 5th and then back to her July 17th.
The next day off to the pain specialist in the morning. I knew there was not much he can do after the facet block did not work. His recommendation was to see a neurosurgeon.
Then in the afternoon we were off to the orthopedist. I was not expecting much since we had not look with injections. So he too recommended I see a neurosurgeon as well. He gave me some names, of course none were on the insurance. So faxed him alist and he recommended too. So my good friend Audree will come with me on July 18th at 9:30 am!
That is about it for now.....next week check up with the cardiologist on the 5th!
Sunday, June 24, 2007
GRAINS of GRATITUDE...

Saturday, June 23, 2007
SO freaking frustrated.........
So just hung up with Ronnie from the service dept..since Theresa is off today. Went to check on the Jeep for me and said the piece now will not be in till Tuesday. I said is it coming from China...there is FedEx or something. So I am fuming but not with him. I said leave a message for Theresa to call me ASAP on Monday morning.
Is $748 plus tax to fix. Well, she is going to have to do something...either a discount or a loaner car for 2 days. My best friend is coming to town and I need my vehicle.
UGH..this is not helping my back at all.
Wednesday, June 20, 2007
NOT doing GOOD, Not doing GOOD at ALL...
SO get there and not feeling hot...well my sugar is 50 and feel miserable and very sweaty. So they get me settled in, meaning into the lovely hospital gown and get the IV going. ANd then give me dextrose to help my sugars. Got up to 111.
They finally take me back and get everything going for the procedure. He gave me a nerve block and hoping that worked.
After the procedure, my sugar was 88 and after apple juice for some reason went to 75. But was feeling all right. Just wanted to get home.
Got home about 2:45 pm and and can feel the area where my pain from getting tight. And then knew that was not a good sign. As the day went on the pain got worse to what it was before the procedure.
I cannot believe this, all I want is some relief. It hurts walking, standing and now feel a bit more when I sit. It is not fair. I want some RELIEF!!!!!!!!! I am not asking much!!!
They call to follow up tomorrow and will tell them. I have an appointment next week with the pain doc and the orthopedist on the same day. I NEED something that is going to work.
Sunday, June 17, 2007
GRAINS of GRATITUDE....
Aviva has loved the first week of camp. Hard to believe she finished her first week. They had a field trip to Laser Quest. She swims twice a day and does lots of great activities. She loves going and being with her friends. She say she cannot pick just one ctivity because she loves them all.Spider and Aviva went to Walmart together yesterday for me...gave them a list and they were gone almost 2 hours. But they had fun and she got McDonalds so not bad for her. I enjoyed the quiet time.
My friends have been great this week. Just helping me out by taking Aviva to and from camp. Making it easier for me so I do not have to walk much.
I am thankful for Spider keeping the house clean and doing all the dishes (since the dishwasher broke). Makes it easier on me when he knows I cannot do it.
And we are very thankful that we can celebrate Father's Day with Spider...we are not doing much but we are together and that is most important. He will probably take Aviva out to the pool or Chuck E Cheese. First he went off to the gym!!
Great news for Spider...he picked up 2 gigs per weekend...,so know he will have 3 per weekend. Will definitely help us do some stuff around the house. And we can go see him play since it is at a restaurant down on the water in Fort Lauderdale. Hoping to go next wek. We love to see him play!
Thursday, June 14, 2007
UPDATE from the follow-up at the PAIN DOC...
They will insert an block with iodine using a little camera (fluroscope) to see it gets in the joints. If I have no pain after 6 to 8 hours from walking or standing, then they know it works. I will go back and they will burn off the nerve endings. I sure hope that is it because after that it is surgery. I do not want to resort to that.
Monday, June 11, 2007
Successful first day of CAMP.............
(she wore blue but then ate breakfast and got i on her so we changed to the pink top!!!!!!)
She was up at 6:45 am...we did not leave till 8:20 am. She was so excited. She rated it a perfect 10. She has 12 girls in her bunk and she knows 4 of them. Not bad at all.
I was worried she would not eat lunch because she is so picky. Well, she ate and had mac and cheese!!!!!!!!
They swam twice, once for instruction and once for fun. Played soccer and went to arts and crafts.
Wednesday they have their first field trip to Laser Quest!!
Sunday, June 10, 2007
GRAINS of GRATITUDE

*Yesterday as a family we went to a birthday party for a friend of Aviva's...they go all out every year. This year was again Disney but all about water. And had the rock climbing wall too. They had a spread of food like you would not believe and the cake and table were set up really nice. It was nice to the 3 of us. Aviva had a blast. We did not say till the end was late already but they were having fireworks.
Friday, June 08, 2007
I am definitely getting old...
June 12: Neurologist
June 14: Follow up with the pain doctor
June 22: Consult for Lap Band
June 26: Opthomalogist
June 27: Follow up with Orthopedist
July 5: Cardiologist
July 10: Endocrinologist
I believe that is it unless one doc wants to send me for testing.
I had the epidural yesterday and thought would feel some relief by now but walking today at the orientation for Aviva's camp really hurt and standing and talking definitely was not pleasant. The nurse said could take up to 3 days so hoping it works for me. If not, I am not sure. Endo does not like how it affects my blood sugar....yesterday was a high of 370 today the high got to 478.
I will be bringing my MRI results to the Neurologist to see what he has to say and to discuss nerve testing on legs and the neuropathy of wrists and the carpel tunnel syndrome.
HATE is EVIL...
But the story that left me in tears was the story of 2 women. One was a holocaust survivor and one was the daughter of a Nazi General who killed thousands of Jews. The Jewish woman worked in Monica's father's house for 20 months. Monika found out that Helen was alive and wrote her letter. She wanted to ask for forgiveness. They met in Krakow, Poland for the first time. I think I had tears and cried through the whole piece.
Monica learned how dangerous her father was from the movie Schindler's List and it touched home for me.
See my great great uncle was on Schindler's List but we did not find out till the movie came out. By that time my uncle was in his 90's and did not get out much...so one of is great niece's wrote a letter to Steven Speilberg about him. Well, he sent a representative to my uncle's house with the movie so he can watch it.
They went back to the home were Helen spent 20 months in the house as this evil man's slave starting at the age of 14. She would hear shots from the house this man was shooting innocent people in the streets just because they were Jews. Helen said she felt like she was there all those years ago...
At the end she said Hate is evil and we need to work past and forgive. With out forgiveness there will be always be hate.
And then they did a test at the end on how you respond to words and different colors of people......The Prejudice Test.
An Oprah that should not be missed.
Thursday, June 07, 2007
I am a BIT worried.....
I am so tired of being in PAIN, it affects everything I do in my life. I do not shop anymore because it hurts so much by the time I am done that I am in tears. I worry about when I go places will it be a long walk and can I do it. Or I have Spider come and he drops me off in front and then parks the car. I want my independence back like before.
So I am home from the epidural for a few hours now, and while getting dinner for Aviva ready my back is in the same pain when standing as yesterday. I pray to G-d that this works. The idea of surgery is scary to me. I have no family around to help out. I do have good friends and so grateful for that.
I just hope by the morning I am feeling some relief.
Wednesday, June 06, 2007
How AVIVA'S mind works....
Well, the part came up to the left to the left. So all the fans were waving their hands to the left along with Beyonce. So Aviva goes mommy they are not waving to the left they are going to the right (very good observing on her part). I explained to her that yes they were going to the left but on camera it looks to the right. She goes NO MOMMY they are going to the right. So again tried to explain and she looked and me and said they are just wrong.
Gave me a good laugh how she was following along!!
Monday, June 04, 2007
How about some MAXI and JEFFREY.....
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Sunday, June 03, 2007
GRAINS of GRATITUDE.........
Finally the doctors are listening to me and i will get my epidural on Thursday. That is as long as I have permission from the endocrinologist......because of how high my sugars got the last itme. Hoping for some relief.
I was able to make all my Disney Dining reservations for our trip in November. Got all I wanted and the times. Even booked Aviva into the Sandcastle Club while Spider and I go for dinner for our anniversary at the Californa Grill.....now hoping to get a window seat so we can see the fireworks from Wishes while we eat. It is for our 11 anniversary.
We have a week off before camp starts...looking forward to sleeping in, and spending time with Aviva! We go Friday for camp orientation. We already know she is a bunk with at least 3 of her friends.
Friday, June 01, 2007
Thursday, May 31, 2007
UPDATE on my visit to the pain doc....
So fingers crossed all goes well and I can have it Thursday.
Back to the pain specialist today...cannot live like this...
it is not fair that my life is basically on hold or cannot do much because of how the pain is when walking and standing. They want to wait till the nerve testing results are in....but so far just on my hands have been done and results are not in yet. Well not good enough for me. He is worried because sugar got to 412, but before I had the injection they never told me or consulted with my endocrinologist to come up with a plan.
I am so frustrated.
Wednesday, May 30, 2007
Tuesday, May 29, 2007
TODAY I go for.....
Then calling the pain doc tomorrow because I cannot live with this pain much longer. I had the nerve testing done on my hands but not on legs yet (insurance reasons). I cannot wait for results for both, they have to do something for the pain. Living like this is really killing me. I dread going out because of the pain. It is so rough. Just thinking about it makes me cry.
Sunday, May 27, 2007
GRAINS of GRATITUDE...

I am still here with constant back pain so will be calling again the pain clinic. I had nerve testing on my hands done Thursday (need legs too but insurance won't pay for both at the same time). Let me tell you not pleasant at all. But something has to be done.,...cannot go on another week or more like this. Spider has been amazing..shopping, cleaning and just taking care of everything I used to do. Oh nd working lots of overtime!! I truly love him for all he has done. Tuesday have another endoscopy and he will take me again on very little sleep!! What a lucky girl I am to have him!!
Saturday, May 26, 2007
Wednesday, May 23, 2007
PROCRASTINATION pays off......
I got a 23/25 on my paper and I am thrilled with that. She really liked it, but had a few minor things with the APA format.
I am happy!!!
Sunday, May 20, 2007
GRAINS of GRATITUDE.......
What a week it has been in our household...Thank you Christine......1. What a great time the 3 of us had at Family Fun Day at Aviva's school. She was so happy that we both were able to attend. She served us breakfast. We watched a great DVD of pictures from throughout the year. We all had tears in our eyes. Our children have come so far this year. It truly helps that we had an amazing teacher.
2. I am thankful for Spider for taking over many of the house responsibilities...like the cooking and cleaning. And he has done it with out complaining. So yesterday I sent him grocery shopping with a blank check...mind you when I shop I spend $70 a week well he spent...are you siting down? $156 for the three of us. Frm now if he shops he gets cash and cannot go over that amount!! But do appreciate him doing the shopping.
3. I am so happy that I got my paper done on Somebody Else's Kids. You have to read this book if you have not. It is the year in he life of a special educaion teacher with 4 totally different students.
4. I am very thankful that Aviva has been so good to me and helpful all at the same time. I am in such agony with my back and she is so understanding. She will help around the house and rubs my back to make me feel better.
5. And happy to say we are going to see Shrek the 3rd today as a family. We are all looking forward to some good laughs!!!
Saturday, May 19, 2007
NO MORE PRCRASTINATION for ME....
NO more procrastination...will begin the next project Monday and will finish way before it is due!
Torey Hayden is a great author.....I highly recommend her!
Friday, May 18, 2007
FAMILY Fun Day at Aviva's School
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Wednesday, May 16, 2007
An UPDATE but still no relief.....
So I saw the doctor (not mine) and explained what was going on. I am have some tingly feeling and numbness in my feet and hands. So he took more info and then another doc came in the head guy. He said before considering an epidural he wants me to talk to the endocrinologist about peripheral neuropothy. He wants them to do some nerve testings before deciding how to proceed. He does not want to do the epidural and then not work. I said I just want to walk with out pain.
Being diabetic he has to take extra precaution. When they gave me the injection on Thursday never told me my sugars would go very high like 412. And she should have told me to talk to the endo first. So have to be careful if getting steroids again.
So at my appointment this afternoon with the endo....he decided that he can do the nerve testing at his office since they are coming May 24th. And if needed will send me to a neurologist. Makes it easier then having to wait to see a neurologist and scheduling with them.
Meanwhile changed my metformin to 1000 mg twice a day and added the insulin Lantus took away Novolin N and changed Novolog to three times a day!!
So I am still in pain and not sure how much longer I can take it. But from now on Spider will be doing the shopping and errands.
Tuesday, May 15, 2007
PAIN PAIN will not go away...
I cannot have fun with Aviva and take her places. I need this to be resolved. I just want to walk and stand with out pain.
I go tomorrow for a follow up at 9 am. Prayers please.
Sunday, May 13, 2007
GRAINS of GRATITUDE
Happy Mother's Day!!!! I hope all the mom's had a special day with their familis.I am so thankful for my small family. They made my day very special. From the lovely cards they gave me and Aviva writing (all by herself) such beautiful messages. Aviva read each one to me. And then they gave me a power vacuum for the car (I believe this was more for Spider then me), She also made some awesome things at school for me. I love the handmade items so much. She was so proud of what she did.
We actaully spent the whole weekend together. Which meant alot to me. It is always nice to have us home together and having a nice time. And best of all, they made me breakfast today.
Spider let me rest and cleaned the whole house!! He also did laundry and folded the clothes. I am still in a lot of pain with my back. And Spider took good care of me. While he took care of the house and helped with Aviva.
It is hard to believe the school year is almost over...only 12 1/2 more days....and my baby will soon be a first grader....it is very hard to believe. What a year it has been,
Thank you agan Christine for the Grains of Gratitude.
Friday, May 11, 2007
Lots going on....so here is an update....
The was told last week my insurance would cover the Lap-Band surgery and then this week they said NO....and it is a contract exclusion so cannot even fight it. It is very sad. But maybe I have a long lost relative or someone, a friend maybe who has an extra $15,000 laying around....I will pay it back :). I can have $5000 by end of August....so going to talk to the doctor found a great surgeon. Went to a seminar on Tuesday, and filled out the paper work on the computer and waiting to hear back. So hoping to get financing if no relative comes forward. Oh and will play the lottery too, never know....think positive for me.
I also received an amazing book in the mail today called GIFTS...written by parents of child with Down Sydrome. I have some friends who contributed stories to the book. I cannot wait to read it....I think this is a must read for everyone and especially those in the field of exceptional student educaton.
Aviva was the only one in her class to earn enough points in Accelerated Reader to get an invite to the JUNGLE party. Had to have 12 points and Aviva had 12.2 points..I believe she read like 25 books. I am very proud of her. The party is Monday....and hard to believe only12 1/2 more days of kindergarten!









